We Are Home!

L*ily was discharged from the NICU yesterday afternoon! It was so strange pulling up to our house after the longest 23 days of my life!

Our discharge process was long - after over 3 weeks of excellent nurses, we had a nurse that was rather confused about the process and took forever! It was really hard to be patient with her despite anticipating a much longer stay just a few days earlier. Regardless, we are praising God that we are all four finally together. Z was so excited to meet her new sister - the look on her face when she first saw L and then when L actually moved was priceless! We were greeted by Auntie M*eagan who was watching Z, and Grandma K*athy, Auntie M*inke, N*oah and O*liver who came our to rake our leaves and cover our flowers. Later, Auntie E*mily, Au*gust, and Grandpa S*teve stopped by.

L*ily ate very well yesterday and through the night despite all the extra "help" from a very excited and curious sister.






















We go tomorrow to meet our new pediatrician and get L's weight checked to make sure she is taking in enough volume and gaining weight. This will be closely watched in the next few weeks. We will also be discussing the several follow-up appts L will need in the next few months - a hearing exam, a echocardiogram, and a head ultrasound. L didn't pass her hearing screen so she needs a thorough ear exam to determine if she has any hearing loss. Her echo is to check on her VSD - a very small hole between the heart chambers that they are hopeful could close on its own. The head u/s is to ensure that her ventricliomegly (enlarged ventricles in her brain) have completely healed. She will also be receiving early intervention services here at home (much like our Occupational Therapy in the hospital) to help her with her low muscle tone, etc related to her Trisomy 21.

Thank you for all of your prayers, encouragement, and support. We know that your prayers are the reason we are now home!

Please continue to pray for L that she would continue to eat well and grow. Pray for her upcoming appts too. We will keep you posted...



Sometimes it feels nice to just regress and hide too. (Notice also the confiscated Nu*ks in Z's hands as she stands next to the bassinet.)